YIKES. What is going on with our healthcare system?!?! I know many of you ask this on a daily basis. Our physicians are being squeezed so tight that the level of care is visibly and dramatically taking a downward plunge.
Normally I am not one to get on a soap box about anything. But, mess with my kids, and get out of my way.
It took us months to find a pediatric endocrinologist that would treat Hunter. There is one in our geographic area that has the right credentials and regularly sees transgender children. However, she does not accept Hunter’s insurance. FAIL. So, we kept looking. Finally, we found a smart, compassionate, caring endocrinologist that was willing to treat him. She didn’t have the transgender thing under her belt but had access to leading authorities and said she was willing to do what she needed to do to make things happen. SUCCESS.
Our first appointment went really well. Thank g-d. She spent plenty of time with us. She interviewed, examined, shared and committed. All was good that day. I filled out releases so she could speak to our pediatrician, therapist, school social worker and anyone else that was critical to the success of this transition.
Now it’s time for our second appointment. I pull Hunter out of school early. We get to the doctor’s office, we sign in and we wait. And we wait. And we wait. Finally, 45 minutes later we are called in. It is an hour plus from the time we walked in the door until we finally see our doctor. Now, we are late for another appointment so we rush through this appointment after waiting for more than 60 minutes.
Good news, though. She approves the necessary next steps and promises to secure the appropriate documentation from Hunter’s therapist and to connect with the insurance company. We race out of there on a high.
Well, that was exactly one month ago today. We are no further along.
I have now called the endocrinologist’s office multiple times. By the way, nothing has been submitted to the insurance company yet (one month after the appointment). I have spoken to a nurse 4 out of the 5 calls and relayed my concerns. This morning I emphasized the fact that the delay is causing significant depression in my son.
So, we wait. I am disappointed and frustrated and concerned for my son. He deserves better than this. He deserves to get the appropriate care in a timely fashion to put him on the path to emotional and physical wellness.
This is one angry mama bear. Don’t get in my way.
I think one of the issues you are dealing with is that there aren’t many doctors who will treat gender dysphoria. I think this affects the care people can get.
That’s not really our issue, but it is hard to find the right specialist. What has ykur experience been?
Can you make another appointment with her and go in to express your concerns? That’s horrible 😦
I sent her an email. I think we’ve been patient enough, right?