Beyond Grateful

gratitudeAs we wind down the year, many of us take the time to reflect, take stock and in general, look in the rearview mirror. It is so easy to let all of the daily crap beat us down. Some days I don’t even realize that I am not standing up straight; it’s not until I stop and look in the mirror that I notice the hunched shoulders and defeated appearance. I have to remind myself to STAND UP STRAIGHT. Isn’t that what our mothers always told us?

I had no idea that life could be so complicated. I have to admit that there are some days when the thought of putting dinner on the table is just too much to navigate. Those are the times I am relieved that my son is not much of an eater. I could give him a bowl of cereal and a scrambled egg for dinner and he would be just fine. Of course most days I am stressing over the fact that he is too skinny. Our daily routine includes the question, “Did you eat (lunch) today?”

I worry about my business. I worry about paying our bills. I worry about everyone’s well-being. I worry about Hunter’s future. I worry about his school work. I worry about his mental health. I worry about my daughter on a big college campus without a support network. I worry about my dog getting loose and dashing in front of a car. I worry about my husband’s night vision while driving. I worry about solving a client’s marketing challenge. I worry about the fact that I am not exercising. I worry about the extra pounds I’ve managed to accumulate.

STOP IT.

We all have worries. I am not special, by any means.

What I can tell you, however, is that I am beyond grateful. I have a hard-working, loyal husband who is home with us every night and is here every morning when I wake up. I have a smart, funny, beautiful daughter who lights up my life whenever I am with her. My son is kind and caring and brave. He knows who he is and is learning how to go after what he wants. We have a dog that snuggles and plays and provides endless entertainment and love.

It’s been a year since we’ve been asked by our son to “call him Hunter…” A year of finding doctors and therapists and resources. A year of learning and growth and setbacks. We’ve taken baby steps forward. We’ve struggled with the outcomes of poor choices.

Through it all, we’ve stuck together as a family. We survived a tough year. I am looking ahead but not without appreciating where we’ve been and how far we’ve come. I am grateful.

“T” Time

No, I am not talking about watercress finger sandwiches, scones with clotted cream and a steaming pot of Earl Gray. Nor am I thinking about a round of golf here in Michigan or anywhere else.

I am referring to testosterone; “T” as it is familiarly referred to by those transitioning from female to male. “T” is what will deepen the voice, encourage facial hair to grow and build muscle mass. It is the magic elixir that will help to transform a trans boy into a man.

hunter 3For two plus years our son has anticipated this moment. After coming out to me as transgender (female to male) more than a year and a half ago, one of the first things he said was, “I want to go on T.” At that moment, life came to a screeching halt. There was so much I didn’t know, didn’t understand, didn’t want to hear. Hunter had been doing research; he did all his homework and knew exactly what he wanted.

Yesterday was a big day. Yesterday, Hunter, my husband and I drove together to DMC Children’s Specialty Clinic and rode the elevator in anticipation to the Pediatric Endocrinology department housed on the third floor. Long-term, injections will be given by us, at home, on a weekly basis. The first time, however, is a required teaching session with our endocrine nurse.

Over the last few months, I’ve had numerous conversations with two of the nurses. They have been immensely helpful, kind and understanding through some very frustrating situations. I felt like they were trusted friends. While waiting for our “lesson,” the exam room door opened and in walked both nurses. They, too, felt a connection to us and to our journey.

“We just couldn’t wait to meet you,” they exclaimed, practically in unison, as if they’d rehearsed.

We’ve had so many hurdles to get past in order to get to this day, it really was especially meaningful that the nurses were there to cheer us on. And then it was down to business. I think we were attentive students; I know that I, for one, didn’t want to miss a single moment of the instruction — this was not a time to lose focus.

By the time we left, we had truly bonded with our nurse. We knew that she was a wife, a mother, a daughter and a breast cancer survivor. We knew that she cared deeply about her job and the children that she’s able to help every day. We knew that we had made a new friend.

So, here we are. Our journey — Hunter’s journey, has taken a new path. I have been very comfortable with where we were; perhaps, a bit too comfortable. Honestly, I am not sure that I am prepared for the road ahead of us. When will his voice start to change? What will it sound like? When will I feel stubble rather than a soft, smooth baby face? What will it be like for Hunter to go through puberty (again)?

We are hoping to document our weekly “T” times so we can track Hunter’s transition during this part of the journey. I am optimistic that at some point, down the road, I will once again feel comfortable with where we are.

 

 

 

 

Today’s Parent

climbWhat is it like to parent a transgender teen? Well, I can’t really answer that question. I can tell you, however, what it is like to parent my transgender teen. It is an emotional roller coaster. For real.

By now, if you’ve been reading my blog, you know that I love my son unconditionally. I am his advocate. I am his biggest cheerleader. I am a walking billboard for acceptance. That said, this is no piece of cake.

Transgender individuals come with a built-in set of insecurities. They feel different and wrongly put together. They walk around believing that the outside world can see the anxieties and mismatched parts that make-up this living, breathing human.

For every “win” we experience numerous hurdles. For every successful step forward, there are many steps backward. For every joyful milestone, there are tears of frustration and sadness.

Most of us wondered, as we were growing up, if we would find that special someone. The teen years were fraught with bad dates, rejection, wistful longings, that first kiss, a homecoming corsage and so much more. There’s a “lid for every pot,” my grandma would say. Try convincing a trans teen of that concept — a trans teen who feels that no one would want to date “someone like me.” This is sobering.

When Hunter first “came out” to me, one of my immediate concerns was, “how hard would it be for a transgender adult to find love.” Ironic, for sure. Now, we are collecting friends who just happen to be transgender and have managed to successfully find love and create a family. These are the role models our son needs to see. There is someone for everyone.

Being the parent of a trans teen boy is exhausting. It is like regular parenting on steroids. I always joke that Hunter was never an easy child…he was a fussy baby requiring special formula, then came night terrors (if you’ve ever experienced someone going through that you know how frightening and exhausting that is), climbing out of the crib too early, eating anything and everything including rocks, dirt, cigarette butts, chalk, markers and crayons, refusal to take a real nap, disorganized chaos at school where each day meant searching for another lost piece of paper, lunchbox or article of clothing, difficulty learning to read, never learning to write in cursive, printing that’s near impossible to read, an ADHD diagnosis, social anxiety up the wazoo — well, you get the picture.

Being Hunter’s mom has never been easy…but parenting is one tough job. Hunter is bright, kind, artistic, quick-witted and musical. He is loving, caring and an amazing friend. Hunter’s philosophy is don’t be a hater. He embraces diversity and is an outspoken ambassador for the transgender youth community. Hunter is compassionate and vulnerable. He fills my heart in a way that no other human being can. He is different and difficult and moody and complicated.

He is my son and I am today’s parent.

 

High Anxiety

trans medYIKES. What is going on with our healthcare system?!?! I know many of you ask this on a daily basis. Our physicians are being squeezed so tight that the level of care is visibly and dramatically taking a downward plunge.

Normally I am not one to get on a soap box about anything. But, mess with my kids, and get out of my way.

It took us months to find a pediatric endocrinologist that would treat Hunter. There is one in our geographic area that has the right credentials and regularly sees transgender children. However, she does not accept Hunter’s insurance. FAIL. So, we kept looking. Finally, we found a smart, compassionate, caring endocrinologist that was willing to treat him. She didn’t have the transgender thing under her belt but had access to leading authorities and said she was willing to do what she needed to do to make things happen. SUCCESS.

Our first appointment went really well. Thank g-d. She spent plenty of time with us. She interviewed, examined, shared and committed. All was good that day. I filled out releases so she could speak to our pediatrician, therapist, school social worker and anyone else that was critical to the success of this transition.

Now it’s time for our second appointment. I pull Hunter out of school early. We get to the doctor’s office, we sign in and we wait. And we wait. And we wait. Finally, 45 minutes later we are called in. It is an hour plus from the time we walked in the door until we finally see our doctor. Now, we are late for another appointment so we rush through this appointment after waiting for more than 60 minutes.

Good news, though. She approves the necessary next steps and promises to secure the appropriate documentation from Hunter’s therapist and to connect with the insurance company. We race out of there on a high.

Well, that was exactly one month ago today. We are no further along.

I have now called the endocrinologist’s office multiple times. By the way, nothing has been submitted to the insurance company yet (one month after the appointment). I have spoken to a nurse 4 out of the 5 calls and relayed my concerns. This morning I emphasized the fact that the delay is causing significant depression in my son.

So, we wait. I am disappointed and frustrated and concerned for my son. He deserves better than this. He deserves to get the appropriate care in a timely fashion to put him on the path to emotional and physical wellness.

This is one angry mama bear. Don’t get in my way.

Victory

victoryAside from learning about things that I never dreamed I would be researching, I am learning a lot about the “loophole.” Nearly a year ago Hunter asked that we start calling him “Hunter,” rather than “Olivia.” While I choked on the name (I could hear it in my head) as it moved from tongue to my lips, we were committed to doing what was necessary for our son.

What I didn’t really think about was what would come next. When my friend (in a similar situation but about 6 months ahead of us on most fronts) announced that she went to court with her son and now he was legally “Jack,” I found my self in the midst of conflicting emotions. These kids are so young; a legal name change just felt so FINAL. And yet, somehow I was envious of how she took charge and did what she needed to do as a parent of a child who was transitioning from female to male.

We spent nearly an entire school year getting used to the new name. Little by little we expanded our vocabulary until we were using only male pronouns in lieu of the female ones that we had grown accustomed to. Summer came and with it greater acceptance and more knowledge. It was time to apply for a legal name change. It was important that Hunter begin the new school year “officially” as Hunter. We didn’t want any mistakes. It would’ve been devastating for him to sit in a class on the first day and have a teacher take attendance and look for or call out “Olivia.”

So, I filled out the paperwork and waited. Hunter was at camp and I wanted him to sign the documents. Not only did I want him to be a part of the process but I wanted him to tell me that he was 100% sure about the name. Admittedly, there was a tiny part of me that was hanging on to the familiar; I was not quite ready and it was easy to find a reason to wait.

You would have no idea how complicated this entire process is. Legal name change at the state level. Birth certificate legal name change at the state level in which one was born. Gender marker changed on birth certificate. WHOA. Not so fast…this too, is at the state level and every state has it’s own law about changing the gender marker. I went into a tail spin. What good was the name change if Hunter’s birth certificate still indicated that he was female??? According to the state of Florida (where he was born), in order to legally change the gender marker, one needs to submit an affidavit from the physician stating that gender reassignment surgery has occurred. ARE YOU KIDDING ME? Many transgender individuals never have surgery for various reasons. This was crazy and unacceptable.

I reached out to a number of people and organizations (including legal teams) within my network to see if there was a way around this. Hunter was about to start driver’s ed – I had been told that once you get a permit or license it is nearly impossible to change the gender marker on the document.

Facebook at its finest … another mom, who just went through the exact same scenario, was a wealth of information.

LOOPHOLE.

The federal government, not too long ago, changed its policies regarding passports and gender markers. Too good to be true. All we needed was a letter from the doctor stating that Hunter was in the process of transitioning along with the legal name change document from the court. In addition, while the social security administration doesn’t put a gender on the card, they track it for employment purposes. So, the passport and social security card (with new name) become the legal documents in place of the birth certificate.

VICTORY… until the next hurdle.

Out of the blue…

shockingSo, I went to the dentist recently and while catching up with the dental assistant whom I hadn’t seen in quite sometime, I was thrown for a loop. She asked me about my “two girls” and I was momentarily paralyzed.

What do you do? I had a split second to decide if I would just nod or go into a short version of the long story about my second child, who definitely is not a girl. Talk about being caught off guard. WOW.

Since Hunter is not a patient in this dental office anymore, the staff is not aware of what has been going on with him. Our dentist knows the whole story and is completely accepting and supportive and even told me that he is “impressed” with us as parents and how we’ve handled everything (with our transgender son).

Certainly we have no issue sharing our journey and Hunter is very open about his transition from female to male. But, honestly, this is not really the kind of news you share when having small talk before a dental procedure. I felt the wind being knocked out of my sails.

While we are open about our son being transgender, sharing this “out of the blue” ranks up there with, “by the way, we’re getting a divorce,” or “I was just diagnosed with fill in the blank,” — by my standards, these are topics where you choose a time and place to have an honest, open, bare your soul conversation.

When faced with some “news” about a friend or family member (sometimes known as gossip) you have to make a quick decision about how to respond to the messenger; you can nod, mutter an “ah ha,” cough to hide your shock, quickly change the subject or just act as if you didn’t hear what they said. Understandably, this can be an incredibly uncomfortable space to be in…I certainly don’t want to be the one to blurt out shocking news and then not have the time to discuss, empathize or explain.

Given that I was about to get numbed up for a procedure, I did some quick thinking on my feet. Surely, this was a case where a simple nod would suffice. However, I will make sure to ask the doctor to update our family records and to inform his staff. Hopefully, this will eliminate or at least minimize future awkward, pick your jaw up from the floor, I want to disappear moments.

Counting Blessings

transgender symbol and flagI can’t tell you how many times I’ve said “we are so lucky;” lucky to be living in a community that has accepted and supported our family, and in particular, our son. And, even though we are living during a time where a transgender actor is featured on the cover of a national news magazine, movies and television shows are being written with trans characters and plot lines, we have a long way to go.

As parents, we want the best for our children. We have dreams for their future before they are born. We imagine and hope and wonder…we play the “what if” game. From conception, well-intentioned friends and family members ask, “do you know what you are having?”

My answer was always, “yes, a baby.” Honestly, whether that precious bundle of sweet-smelling joy was a boy or a girl, truly did not matter. What did matter, however, was that our baby was healthy. NOTHING else mattered. Not then, not now, not ever.

When Hunter mustered up the courage to come out to us, one of the first things I said to him was, “Our goal is for you to become a healthy adult – to be mentally, emotionally and physically healthy. We will do everything in our power to make sure that happens.”

If, “g-d forbid, your child got diagnosed with condition that required ongoing care and medication in order for them to live a normal, healthy life, you would expect your insurance company to cover most of the charges…without a fight. Children with Type 1 diabetes get insulin. Those with chronic asthma get inhalers and nebulizers. Kids diagnosed with ADHD get stimulant meds so they can concentrate in school. Transgender youth need hormones so they can transition. My FTM son wants “T” (testosterone) so he can become the man he desires to be. Did you know that this is NOT automatically covered by insurance?

Can you imagine telling your asthmatic child that they can’t get the medicine they need to BREATHE? No, I cannot either.

After a year and a half of researching doctors, regular therapy, name changes on official state and federal documents, we are ready; ready to say “yes” to the hormone therapy that Hunter needs to transition and feel whole. Guess what, people? I am not sure that we will be able to get this paid for. Can you imagine? How do I tell my son that even though he followed the protocol, did what he needed to do in order to get to the next step, that he might not be able to get the medication he needs to live his life?

Now, depending on where you live, your benefits will vary. Just like someone in Virginia can easily change name AND gender on a birth certificate and another in Florida cannot, we are finding that medical coverage varies by state as well.

By the way, Apple, the tech giant, has full transgender benefits for its employees who need it. That includes necessary and desired surgeries. WOW. Too bad my son is  not old enough to get a full time job with Apple.

Yes…despite all of this, we are lucky. Even though our journey continues on a steep, uphill path, we are able to share these baby steps and milestones with others. We are able to educate the community, advocate for our son and celebrate each victory, no matter how small.

 

 

Call Him Hunter, Please

It’s been quite a week.

If you had told me a year and a half ago that we would soon be calling our daughter by a different name, I would’ve looked at you as if your head were on backwards. If you had told me that not only would her name change, but that gender pronouns would be different also, I probably would’ve distanced myself from our friendship. No kidding.

Hunter gets legal name changeFast forward seventeen months and not only do we call our child by a different name and use male pronouns, we had his name legally changed. That’s right. A few days ago, my husband, my (FTM) son and I stood before a Judge in family court and affirmed that we wanted to change Olivia’s name to Hunter. WOW.

Side bar: Going into a courtroom made us all a little anxious but aside from that, I didn’t really anticipate the flood of emotions that was to follow. As we finished our business in the courtroom and moved into the hall, I found myself blinking back tears. I wanted to wrap my arms around Hunter and let the emotion flow freely. That’s what I wanted to do. In reality, I sensed that it wouldn’t be cool for me to hug my teenaged son in public in the courthouse. So, I kept my emotions in check as we filed down the hall to the county clerk’s office to get the certified name change documents. I would not embarrass my son; at least not at that moment.

As we approached the parking lot I made Hunter stop for a hug. And he did. He stood there and let me hug him. I know he was happy with the steps taken thus far. I know he knows that we are on his side; that we are walking this journey along side him.

I hope this step in the process makes things a bit easier for Hunter. Now, I can change his name on a host of official documents and files: school, health care, passport, Driver’s Ed and so on. Health care is a biggie — it is awful to wait for an appointment and have them call out, “Olivia, we’re ready for you.” UGH. Until now, some of our doctor’s have been really great. The orthodontist has been calling him Hunter for quite some time now…also, the pediatrician’s office (most of the time).

We can plan and dream and hope. We wish for dreams to come true. Blow out the candles and “make a wish.” Wish upon a star.There is no crystal ball. We certainly don’t know what the future holds. These last seventeen months have been surprising, unexpected, emotional, difficult and momentous. We have travelled an uphill journey that is far from over.

Where will we be seventeen months from now? Let me check my crystal ball.

 

An apology

mother's role mother's loveA while back I made a statement that I felt very sure of. Today I am retracting my statement and offering an apology. When my son told me he was transgender (FTM), I was surprised to hear those words spoken by him. However, I wasn’t shocked. There had been little signs all along and more recently, lots of signals – like cutting off his hair and asking to shop in the boys’ department. As we stepped off the starting block and inched along on our journey I began to meet parents who told me they were SHOCKED by their child’s confession.

“How could that be?” I wondered. Surely, when one reflects back and starts put together all those little pieces, signs, and nagging intuitions, the result is one big message; a billboard of sorts, screaming “how could you have missed this?”

I have always believed that if a parent is tuned in to their children they would never miss something so important.

The other day I had the privilege of talking with a woman who just found out that her daughter wants to be male. Her “girlie, long-haired, pink skirt-wearing” child can no longer live in secret. Anna* was SHOCKED. Listening to her anguished, desperate account of the prior week, where her daughter spent several days in the psychiatric unit on suicide watch, I knew I had been wrong. There had been no signs.
Now, Anna did tell me that her daughter has suffered from depression since an early age. Perhaps this was the red warning flag. Tatum* didn’t have the words or understanding or ability to articulate what was going on. Most likely, the root of her depression was that she was assigned the wrong gender at birth. Her vocabulary didn’t include the word “transgender.”

As a side note, one of the reasons we chose to tell our story publicly was to be a resource for others. It was our hope that by coming forward in our community, at least one family would be helped. Anna told me that while in the hospital, Tatum asked to read Hunter’s story. Never having met us, Anna had no idea how Tatum even knew about Hunter or the recent article that ran in the Detroit Jewish News. Not having their own subscription, they googled the story and were able to print it out, delivering words to their daughter that would bring a source of comfort and hope.

After spending quite a bit of time speaking to Anna, I realized that it is possible to be caught entirely off guard. It is possible to love your child so much that you become deaf and blind to anything that is a bit “off.” We often think, “they march to their own drum,” or “they just aren’t that social,” or any other phrases that make allowances for our children’s differences.

So, I am sorry. I am sorry for making a judgment and pretending to know what goes on in another family. We do the best we can to love and provide and nurture and educate. As parents, we learn as we go. We don’t always have all the answers. As friends and community members we need to reach out and support each other, sharing the knowledge we do have so we can raise stronger families.

*names have been changed to protect the privacy of this family

In a different place

Hunter

When I take the time to think back, I am startled into the realization that a mere eighteen months ago I was in a very different place. Our family was in a different place.

Somehow I’ve managed to brush aside the memories of that overwhelming urge to google every iteration of gender identity disorder that I could come up with. Simultaneous to this desperate search for knowledge, my husband wrestled with the possibility that this was a phase; many adolescents go through an exploration stage, he insisted.

Deep down, I knew he was wrong. I knew this was not a phase. I knew that our child was clear headed in his convictions. This was about much more than shopping in the boys’ department. CONFESSION. Though I was avoiding the inevitable–what I knew down to the core of every fiber of my being, I was seeking out a therapist — not just any therapist. We (Richard and me) wanted someone that would act as “Switzerland.”  FEAR. We were desperately afraid that the wrong therapist would polarize the situation rather that remain neutral. We were terrified, really, that if we chose poorly, the outcome would be devastating.

At this point we are “pre” everything; pre-male pronouns, pre-name change, pre-purging of all things girlie, pre-public awareness, pre-full understanding. When Olivia* initially asked to buy a chest binder I put her off. When I found the remnants of clothing layers shed before bedtime the previous night, my heart began to break. Sports bras, t-shirts and a home-made device looking something like a prototype of a strapless chest binder, heaped onto the floor taunting me to LOOK at what my child was going through. Then, upon discovering that Olivia took it upon herself to order a binder and have it shipped to a friend’s house, a strange mix of tangled emotions reared up at me.

It’s one thing to say, “OK. We accept you. We are with you. We support you.” It’s another to actually feel comfortable with a shift in mindset. I completely understood that my child, my DAUGHTER, wanted to look male. I understood that in order to look male, breasts needed to be camouflaged. What I couldn’t wrap my head around was the use of a binder. I read all the articles that said compressing breast tissue was “harmful, could cause cancer, might cause shortness of breath, and so on.”

It was strange to log on to my computer and see google and amazon searches for chest binders available in a variety of colors, styles and sizes sold by Chinese companies that guaranteed discreet delivery. Hunter was hopefully searching for solutions that would aid his transition and help him “pass” as male when out in public. This garment became a lifeline.

I’ve gotten pretty comfortable with the place we are in. We’ve come a long way over the last year and a half. That’s the good news. The downside is that this is just a temporary stop along the way.  Every so often, I need to remind myself that over the next eighteen months we will be in a very different place than we are in right now. I am not really ready nor prepared for moving on in our journey. I know that moving on means letting go of what has become familiar and comfortable. I am not really ready for the unknown.

 

*Olivia is “pre” name transition